Stroke Treatment Guidelines

I had six weeks postpartum, when I discovered after having a stroke that I have a blood disease in which antibodies in the blood tend to coagulate the blood (anticoagulant lupus). I was on Coumadin / Lovenox treatment for 1 1 / 2 months now and can not reach a level recommended PT / INR between 2 and 3. Until my weekly injections to verify these levels is to this issue, I must continue the Lovenox injections as a precaution because the Coumadin is not working well. I am now taking 12.5 mg (I 10 mg) per day. I guess you can say I'm frustrated because when I started this treatment I was told that I should be the recommended level in about a week. Now, 1 1 / 2 months later, I feel like a pig Guinea to try a high dose (not helping) while maintaining a higher dose (we'll see how your body accepts it at this dose). I followed the diet guidelines and really feel this is not the problem.

If anyone knows what I mean please reply.

Yes, and I have antiphospholipid antibody syndrome (APS). The same disease you have.

You can be resistant Coumadin. But there are also plenty of information that machines are not finger prick accruate for APS patients. They all have disclaimers on them. So you may want your doctor to make a vein to draw comparison. Are you seeing a hematologist? They may want to test the X Factor and compare your INR / PT

Generally most patients are maintained at an INR of 3-4 with the disease. My INR is difficult to regulate. This is only part of the APS. And since you are a woman, our hormones play a role. Actaully in the post-partum illness you are at some of the highest risk of clotting in pregnancy than himself.

Here is a wonderful guide for beginners APS http://www.apsfa.org/newlydx.htm. Here is some basic information on the APS: http://www.apsfa.org/aps.htm

My INR is maintained at 3.5 to 4.5 and more I take aspirin because PSA can cause both arterial and venous clotting. I am also on Plaquenil. Do you keep a journal of the INR and symptoms medical journals? It is surprising fashion, we can find.

It is a nonprofit organization in the United States that can help you. The name is APS Foundation of America, Inc. Their link is below.

Good luck!

Please, try not to be frustrated. I know it's hard, but once your doctor, you stable you will feel much better. all drug trials and errors. especially when it is Coumadin. it just surprises me that he does not yet stabilized you. are you a doctor or your general practitioner heart. Please go to a specialist.

Yes.I not know your case somehow (we do the blood sample then taking the transformation of the machine that will read the PT / INR of your blood). You see, your case is especially serological .. Lupus anticoagulant effect is a problem with an antibody having to go against your blood clotting system.The role of your Coumadin is now not kill the lupus anticoagulant, but to have the normal function of blood. . which is to make the blood clot as much as you do because it will cause a thrombosis (clot that clogs your veins) Therefore, the mild stroke happen.The good dose should be carried out because doctors do not want not make your blood too thin, because it cause bleeding tendencies.On other hand, if the dose is too high then higher risk for blood clots that can lead to death .. (God forbid) Be patient .. not that you are being tested, but you see the case is also difficult for clinicians. I .. have encountered patients who undergo skin prick tests to determine also their repeated bleeding and clotting time. Hope.