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Sanctura XrMisdiagnosis of interstitial cystitis?

I am 21 year old woman with a history of bladder infections that were cured easily with Ciproflaxin. Usually, they have been contracted by drinking sodas.

Ciproflaxin stopped working in March. No infection was found. I was referred to a urologist. Keep in mind, I worked for a doctor who prescribed the drug as an alternative for me to miss work to go to the doctor. Overuse of antibiotics = immunity to its effects.

April 2008 - At first, I was told that I developed an overactive bladder during the night. I have been on Vesicare, Urel, Sanctura XR, Nitrofur. Nitrofur helped. But he left me on it for a week, I had pain after. I determined that he was an idiot, I went to another urologist.

April-July 2008, I was diagnosed with interstitial cystitis or "IC" in April, after a review for 2 seconds on my vagina. Literally a glance. No forceps, nothing. They put me on Elmiron, Urel, Prosed, and tried to instillations of the bladder (direct injection of medicine into the bladder through a cathader). Everything is 500% worse. I went to another urologist, because it has never been in the office to explain why nothing worked.

Aug 2008 - Third urologist said it was in my head and gave me an antidepressant and prescribed exercises and pelvic floor electrical stimulation therapy. I told him he was an idiot, and went to another doctor.

Recently, I went to another gynecologist. She said we'll start over. She put me on Macrobid for 2 weeks, and blowing baking soda 6 times a day. Strangely, I feel better. 80% better. She also found blood in my urine, which indicates an infection. Nobody else seemed to be able to find the infection.

Am I crazy? Or have I been misdiagnosed? Has anyone had this experience? Please help. I need to know if I'm on the right track. Thank you.

In fact, what happened to me was just the opposite. I have had IC for over 9 years, but was only diagnosed with it within the last year. I am one of those rare men (90% of those with IC are women) who has IC. It is difficult to diagnose in men because so many other things have symptoms similar to IC. I suffered through several medications include antibiotics that have been of no help. I had nine surgeries and different procedures for aleviate my symptoms. Still no help. Finally, I found a doctor who listened to my symptoms and tied together and I was diagnosed with IC. I now take Elmiron and Intilli the bladder through a catheter when symptoms are severe. Good luck to you and hope you find the answer. Just keep trying and eventually you will succeed.

I was diagnosed with IC in 2005. Baking soda is actually one of the remedies or help for the IC. It helps to lower the pH of your urine.

I think it's a delicate situation. Sometimes, antibiotics can ignite IC.

When I was 18 I kept getting what it was like there was blood uti / protein infection. Sometimes there was not. I seriously went to the doctor every two weeks. analgesics, elmiron, organizations struggle against all. It is very difficult to diagnose IC. The only way is to have your bladder checked for ulcers. Some people have no other ic. Its a complex disease, which has become popular in recent years. Nobody knows what it does or how to fix it. I think you've put in some crappy doctors, like me, who know that the new and future disease and instead of simply looking indept will prescribe pills. ic-network is an excellent website where you can watch some of this stuff on. luck.

Posted on February 14, 2010.
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